Training of a Service Dog Part 1

I’ve finally started the journey towards sharing the experience of raising and training a service dog.  I am not a professional dog trainer, though I do have the assistance of a professional to help guide me in this quest.  Nico’s main role will be to assist me as a balance dog, and help retrieve items that I drop.

Nico is a 16 week old German Shepherd; the breeder selected over his litter mates to be placed in the role of service dog based on his temperament and disposition.

Nico is like any other excitable puppy at this time; however, his training is a bit more focused than for a pet.  During these early weeks, we stress obedience and socialization as well as the typical house training that occurs with a puppy of this age.

House training is fairly routine.  Consistently taking him out after he drinks or eats or appears to be sniffing around works well.  When I cannot watch him, I place him in his crate which is just big enough for him to stand or lay or turn around.  The crate is a wonderful housetraining tool because most dogs will not soil where they sleep so they learn to hold it until you come to take them outside.  Just remember, young puppies cannot hold it long and will soil themselves if not attended to.  The rule of thumb is to take their age in months and add one.  This is the number of hours they can hold their bladders.  The rule for bowels is always within 15 minutes of eating; however, they will go more than that and as a primary care giver you quickly learn the schedule.  Nico’s schedule is every morning around 5:30AM, again at lunch, then right after dinner.

Socialization is accomplished by taking him wherever I can and introducing him to all sorts of sights, sounds and people; as well as getting him used to riding in a vehicle.  We live in a very rural area so it can be difficult to find these situations.  There is a feed supply store called Orschelns that allows dogs inside.  As an 8 week old puppy he loved the attention and all of the people but he kept close to me, a great sign.  He showed interest and the cashier engaged him at the counter which went a long way to establishing confidence and a willingness to connect with his environment.  We make regular trips to different Orscheln stores to expose him to this type of environment and familiarize him with things like carts and helping him ignore things like food and toys.  He does very well with this.  I’ve also started taking him to the local high school track events.  He is exposed to lots of people, announcers booming voices and starter gunshots.  He was enthralled.  This is a great sign.  Confidence is everything,  a dog that shies or cowers would not make a good service dog because a dog that does those things is not consistently reliable in all situations.

Vehicle rides in the beginning were very easy for him.  His first ride; 5 hours long on the way home from the breeder, he slept 90% of the way on the seat next to me.  Now he seems to salivate more and seems a little bit anxious.  I’m not sure what triggered the change as he hasn’t had any bad experiences so we’ll just continue to expose him to rides and make them positive with treat rewards.

I’ve also asked my husband to allow me to care for all of Nico’s needs.  This means that no matter how I feel, I take him for his walks and I feed him and I meet all of his basic needs.  This establishes me as pack leader and it also strengthens the bond between us.  As a result of this Nico is very focused on me.  We have a bit of separation anxiety to deal with as I cannot leave the room; even if my husband is with him.  He is calm when he knows I am leaving the house without him; but if I am in the house, he feels a need to be at my side.  I am not sure if this is good or bad since a service dog needs to want to be with his handler.  I am not correcting it at this point. When I need to go somewhere in the house where he can’t be with me such as the wash room I either crate him or ask my husband to distract him with a toy and that seems to be helpful though he will sit and stare in my direction until I return.

Nico receives 3 structured walks a day.  By structured I mean that he is gently taught to walk alongside and keep his head up.  This is accomplished by luring with his nose and rewarding with a treat.  This concept is important, it teaches him to remain focused on me and not pull me along.  The walks also serve another important function; they help him stay in touch with his natural instincts and need to migrate and work for his food and they help him utilize his energy in a positive way.  That being said; he is a puppy.  We’ve had a rough start with this one as we expected.  At 8 weeks he began to walk very naturally alongside; then by 12 weeks he started to test his limits like a defiant child.  This is perfectly normal.  Corrections need to be kept to a minimum here as not to damage the trust.  I also found that physical corrections when employed too frequently (such as a quick leash correction for pulling) can have the opposite affect on what you’re trying to accomplish.  What I am finding is that ignoring mistakes and rewarding good behavior seems to advance the lessons in a more timely fashion and keeps his attitude positive and interested.  For the days I am unable to walk with him, I’ve started training him to walk on the treadmill at home.

I started his obedience training at 8 weeks using clicker training and food rewards.  Young puppies are very food driven.  I began teaching him to sit by holding a high value food treat (in this case soft chicken bits) just over his nose and luring him straight back so he naturally attained the sit position to smell the treat.  As soon as his bottom touched the floor I clicked the clicker to signify the correct result and that food would soon follow, and then I gave him the morsel.  This worked wonderfully.  He was so attentive he began to anticipate the response.  His focus was so intent it looked like he was staring right through me.  Once he was doing this reliably and without mistake, I added the voice command and a hand signal, once again he caught on very quickly.

I followed with the next command by adding the “down”.  Here I used a chicken bit and lured him by bringing it down and forward…he quickly crawled into the proper position and I clicked then rewarded the behavior.  He now recognizes the hand signal and the vocal command.  Both of these commands; sit and down, are readily obeyed from a distance without treats.

Our latest command is “place”.  I use this command to have him go to his bed, lie down and stay.  This is important in situations where he may eventually go somewhere with me where he will need to lie down for long periods of time in one position such as at a restaurant or meeting.  This is a three part command so it is more complicated.  First he must move to his bed and then assume the down position and stay.  I started this command by using a treat as I say the word “place” and have him follow the treat to his bed, then, without vocal reinforcement I use the same treat to lure him into a down position, once there I hold my free hand in a stopping motion and back away from him without giving him the treat.  If he moves, I repeat the process.  He does not get the treat until he completes all three steps then waits to be called.  He is beginning to do this reasonably well, though he is not consistent yet.

It can’t be all work and no fun; especially since eventually food lures lose their appeal and training can stall.  I found Nico’s soft spot.  He has many toys and he loves them all.  He has a stuffed lion that he has had since the drive home from the breeders and he snuggles with it and occasionally still nurses on it as if he is a small pup.  He also has a Kong toy that’s wrapped in canvas that he loves to growl and play fight with and show how he could have made a great police dog.  But his weak spot is a blue ball that is made of a soft but virtually indestructible material.  He will play with this for hours and if you stop playing he will just sit with it hanging out of his mouth.  So that is his trigger.  That will be his new reward.  I’ve taught him to catch it out of the air consistently, clever boy he is.  He is also very reliable about bringing it back to me each time.  He has trouble with letting go.  He wants me to throw it, but he doesn’t want to let go.  So we are working on that one.

I expect to begin marker training when he reliably hands me the ball.  I plan to begin with a small mat or feed tub.  I will place it on the floor and tell him to “touch”.  Every time he does, I will offer his reward.  This is a precursor training exercise to teaching things such as turning on and off lights, pushing buttons for automatic doors etc.  He will also learn to pull things which will assist with things such as pulling open doors around the house, pulling out a laundry basket, pulling off socks etc.

I expect we’ll continue learning together what works and what doesn’t, and I will continue to update you of our progress.  Over Memorial Day weekend he will be meeting the trainer I have teamed up with and he will spend 3 days there socializing with other dogs and refining some of the things I’ve taught him.  It will be strange for both of us being without each other for that time, but a necessary part of the process.  I’ve had dogs all my life, but this is the first dog that I’ve bonded so strongly with.

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Relationships and MS…

At some point, most of us are confronted with having to tell someone; whether it’s a significant other, potential partner, friend or family, about our struggles with multiple sclerosis.  Choosing to disclose the illness; no matter who is listening, is a very personal decision and once the information is shared, we can’t take it back. Responses can vary as much as the symptoms we experience with this disease; so it’s important to consider the decision carefully.

Coming up with a plan of action ahead of time helps us feel less vulnerable and more in control of the situation.

Understanding why we want this person to know we are sick can help in developing the best approach to disclosure.  Reasons to disclose might include; having support, their understanding of symptoms, giving them the opportunity to know something about us that will likely impact the relationship at times.   Knowing what we want them to understand about our disease is also helpful; perhaps it’s the overall impact the disease has on our lives, or maybe it’s just one significant factor that impacts them directly.  Sometimes we are compelled to take more of a caregiver role such as making sure they understand it’s not contagious or fatal; and sometimes we just need to show them we are still strong despite the illness.

Once we’ve decided the why’s and what’s, it’s time to figure out the how’s.  What is the best approach?  There really is no one, right way to explain to somebody who cares about us that we have a chronic illness.  It’s important to remember that we are dealing them the same blow that we received.  They are going to have feelings; they are going to react.  Some of those reactions may be sudden concern or empathy.  not everyone reacts to news such as this the same way.  Some people will be at a loss for words or want to quickly change the subject; don’t mistake this for not caring.  They may not feel comfortable processing the information at that moment or they may not know how to react.  Some people have a gift for saying all the wrong things; don’t judge them, give them time.  It seems that some people have a knee jerk reaction to help and it goes terribly wrong; again, it doesn’t mean they don’t care, and by allowing ourselves to negatively respond to something said will only undo everything we are trying to accomplish through disclosure.

So how do we present the topic?  It’s often good to have a low-key, face to face conversation.  It should take place at a time and in a place where distractions are at a minimum but it isn’t necessary to make it the sole focus of the visit.  In fact it’s probably better to make it one topic of conversation among other topics so that there is far less pressure on either person before or after the topic is discussed.  It is often nice to have another direction to take the conversation off-topic after all questions are resolved.  Remember; its always better to end a conversation with someone on a positive note.

Being prepared to answer questions is really important.  It really isn’t fair or healthy to tell someone something that will impact both lives and then refuse to talk further about it.  Be prepared to explain what Multiple Sclerosis is, what the long term prognosis could mean, and remember to tell them that there is still a lot of research and testing being done with a lot of advancement and possibilities.

One thing to consider is that we should choose a time to disclose when we are feeling more in control of ourselves.  How we are feeling will come through in our explanation and will affect the person we are talking with.  This is not to say that we always have to be upbeat and happy; that’s not realistic, but rather that we give the person on the other end an opportunity to process all of this without the added burden of having to comfort us at the same time they are first hearing this news.

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Traveling with Multiple Sclerosis

Long lines, delays, mysteriously missing reservations, and lost luggage are just a few of the annoyances that come with traveling.  These annoyances are dreadful for everyone, but if you are a traveler with special needs, they sometimes become serious issues.  Combine that with all of the considerations that must go with planning a trip when you have special needs and a trip seems daunting.  Fortunately; Ingenuity and some careful planning help keep the enjoyment in the trip.

Planning a Trip

First consider how long you plan to be gone, where you plan to go and how you plan to get there. (Note; if this is a vacation, sometimes traveling in the off season is much more enjoyable.  This gives the luxury of less crowds and more available resources as well as cooler temperatures and less heat related fatigue).

  • Travel agents or tour companies are excellent resources for setting up a trip with all of the necessary accommodations.  Remember to give them all of the necessary information such as your mobility requirements and any equipment you may travel with.  We used a tour company when traveling to Italy and the convenience of it all was worth every penny.  They quoted us a price; and for that price, they arranged and purchased our tickets for: our flight there and home, our boat, train and bus tickets in various cities, our hotel accommodations and local tour guides for each city.  All we had to do was show up, purchase our meals and whatever we wanted to do and the rest was all taken care of complete with a travel itinerary that told us where to be and when.
  • Check on your hotel.  You can research most facilities online; however, don’t be shy about calling and asking for necessary accommodations.  Having a room on the first floor really makes life with a suitcase easier.  Its also important to note stair/ramp access, pool access, restrooms etc.  It also helps to find out if the hotel has shower chairs available or any other special accommodations you may need.

What to Bring

  • The most important item to have when traveling with all the necessary gear and medication is a doctors prescription and note of explanation. (for medications, and cooling vests).
  • Medications should almost always accompany you on board in a small cooler with an icepack(if your medication requires).    This allows you to still have your medications in the event that you and your luggage are separated.  Also; keep in mind you can purchase or obtain free from some drug companies, a needle clipper.  This clipper will cut off and store the needle in a small handheld device as opposed to lugging your sharps container everywhere.  This renders the remainder of the syringe safe to dispose of in the trash.
  • Use a wheeled, carry-on sized suitcase.  As a veteran traveler I highly recommend using a small carry-on suitcase for all of your travel needs if you can get away with it.  You can always find a place to do a load of laundry if you plan to be away for a while but this configuration helps avoid lost luggage, lessens fatigue from carrying your bag everywhere and waiting in baggage claim after your flight.
  • Keep in mind the topography of where you plan to be.  If where your visiting has loads of cobblestone streets, a rolling walker may not be the best aid.  Take what works best for where your going.  A cane may mean moving about slower but it may free up your options for where you go.  If a cane doesn’t work for your condition perhaps forearm crutches are a possibility.  Talking with your doctor may reveal many alternatives you hadn’t considered.  Just remember; a great trip can turn loathesome if your fighting your way around everywhere you go.
  • Remember many facilities offer free wheelchairs to use while you are there.  Places such as airports, museums, and others can turn what would be a fatiguing visit into a more enjoyable vacation.  don’t let pride keep you from having a great trip.

General Advice

  • Take advantage of early boarding for people needing assistance at the airport
  • Try to arrange an isle seat near the front of the plane.  (Anything to lessen walks and waits will help with fatigue, and close proximity to the washroom helps with those sudden need to go moments).
  • Always keep medications in their original labeled containers.
  • Keep hydrated and make sure you rest when you start to feel fatigued.  Nothing can ruin a vacation faster than feeling sub-par while wrestling with long lines and navigating difficult terrain.  Sometimes just taking a 30 minute break at a local cafe can reset you for the rest of the day.
  • Know where the hospitals are in the cities you plan to visit
  • utilize baggage porters or valets when you need to.

Enjoy your trip!

Posted in chronic disease, Disease, Health, ms, multiple sclerosis, Planning, RRMS, Traveling with MS | Tagged , , , | Leave a comment

Gluten Free Diet…And Other MS Cures.

Gluten is a protein found in some grains such as wheat, barley, and rye. There is some controversy pertaining to whether oats should also be added to this group because of possible cross-contamination occurring at some milling facilities. Gluten is also a food additive that is found in many foods; for example, ice cream and ketchup.

Why would we want to eliminate Gluten from our diets?  Answers vary.  There is thought to be a connection between food sensitivities (not necessarily allergy); more specifically, the way our bodies react to this type of sensitivity, and MS symptoms.

When we have an adverse reaction to a food; it is often the protein in that food that is the culprit (gluten for instance).  Our immune system responds to this as if it is a harmful invader.  The immune system then triggers a reaction.  Reactions can vary from person to person.

While I am skeptical at best of any type of diet “curing” MS, (at present; an incurable disease), I do believe that better nutrition can afford those of us suffering with MS a better quality of life through moderate control of some of our symptoms.

There are some issues with a gluten free diet.  It is possible to become deficient in other nutrients (fiber, thiamine, riboflavin, niacin, folate, iron, or calcium for example).  It is important to look at the big picture when exploring radical changes in our diet.  Balance is extremely important for the human body.

One thing I always try to stress is to remember we are not trying to cure our disease.  We are looking for ways to make our quality of life better.  Leave the cures to the medical professionals.  If a change in our diet improves our symptoms, we’ve found supporting therapy.  We should always remember to discuss these with our doctor because some diet changes or herbal therapies can directly interact or interfere with certain medications.

I suggest; if planning to try a diet or herbal remedy, to always log findings in a notebook.  This log should contain every detail:

  • What changes were made (diet, introduction of an herbal remedy)
  • Amount of change or what the change was (diet changes noted/dosage of herbal remedy)
  • note the date and the time of day
  • effects of change

Keeping track of our efforts will help us find what works best for us and what doesn’t.  It will also help track down any causes, if we have adverse reactions.

Posted in alternative therapy, chronic disease, Diet, Disease, Health, ms, multiple sclerosis, RRMS, Therapy | Tagged , , , , , | 7 Comments

Peer Support for MS Sufferers.

Connecting with another person who knows first hand what we are going through is essential when confronted with a life changing diagnosis such as MS.  Peer support groups or peer telephone support are great ways to meet new people that share similar experiences.

Peer support offers us a way to learn more about the disease, share experiences or personal feelings on the issues faced, talk through problems or choices, and discuss what works and what doesn’t.  Topics can very from the disease itself to coping mechanisms for dealing with common day to day issues.

There are several avenues we can use to find those connections.  In the United States and Canada; the National MS Society has; MSFriends for peer telephone support.  Click on the links to find their web pages.  They also have a Peer Support and Mentor Program.  The Multiple Sclerosis foundation offers an interactive map on their website to find local (across the US) support groups.  For readers not located in the US; I am working to put together a page that will offer a listing of contact information for support groups world wide.  I will send out a notice when it is available; please make sure you are subscribed to receive updates.  You can also find me on twitter: (kitsune1971) for updates.  If you know of any resources that you would like to add, please contact me with the information: kitsune1971@hotmail.com

No one needs to suffer alone in silence. 

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Receiving a Diagnosis of Multiple Sclerosis

The initial diagnosis of Multiple Sclerosis (also known as MS) is scary.  We feel a wide range of emotions of everything from shock to relief.  Typically by the time diagnosis is reached, we’ve been through a battery of tests and already suspected the possibility but somehow having the official word still comes as a bit of a shock.

Denial, sadness, anger, fear, confusion, avoidance, sleeplessness, crying and withdraw can all be normal reactions.  Relief is also a common reaction after wondering for so long what could be wrong and finally having those answers.

After the initial shock wears off, acceptance is our goal.  Multiple Sclerosis is a progressive disease that does not yet have a cure.  Acceptance is the key to being able to get on with life.  Acceptance has different meaning to different people; however, the goal here is to accept that our life is going to change.  We may not be able to do all of the things we used to do and we may sometimes need help.  If we fight this; it will be very difficult, if not impossible to find happiness because we will be forever fighting ourselves.

Once we’ve accepted we have MS; then it’s time to take back some control.  This disease robs us of who we once were.  There are many ways we lose control with this disease; but it doesn’t have to stay that way.  There are ways to regain some of that control.  Aside from various medications that help to alleviate symptoms; there are also other ways to be in control.  Taking control of our healthcare is a wonderful feeling of empowerment.  Knowing our disease.  Learning everything we can about it.  Keeping our own health file (see: http://livingms.org/2011/10/27/taking-control-of-your-health-care/).  Learning ways to manage our symptoms.  Talking with our doctors and creating our own health care team that will work with us.  A bit of planning or modification goes a long way to helping us accomplish some of the things we used to do; and those accomplishments become a lot sweeter than they were before.

A very important part of coping with Multiple Sclerosis is talking with others who are experiencing the same things we are.  Thanks to modern technology there are message boards available if we wish to test the waters without jumping in.  Once we feel comfortable talking about our diagnosis, we can consider joining a support group.  It is a great way to get out and be around people who understand what we are going through.

When the time comes that our body changes, our abilities change; remember we need to look at ourselves for who we are; and not hide from our reflection.  See the beauty within and within all accomplishments.  Be assertive, no one should make you feel inferior.  Speak up if someone says something frustrating.  We are still the same people we always were; possibly even stronger.

Posted in chronic disease, Disease, Health, ms, multiple sclerosis, psychological health, RRMS | Tagged , , , , , , | 6 Comments

MS flare? When to call the doctor…

For many people suffering with MS, knowing when to call the doctor is a difficult decision.  Questions abound as to the significance of symptoms and what exactly is an exacerbation compared to the new “normal” for the patient.

An exacerbation (also called; a flare, attack or relapse), is a sudden worsening of a symptom or symptoms after a period of stability.  Also included are new symptoms that suddenly appear or a symptom that grows worse lasting at least 24 hours.  Remember; not all symptoms are always related to Multiple Sclerosis.  Sometimes there is another underlying condition that is responsible.

Calling the doctor is always a good idea if you are unsure or uncomfortable about any aspects of what you are feeling.  During this visit; it is a good time to review with the doctor what you can expect from the disease and from your treatment.  This will help you to establish a baseline for your normal and what is considered an exacerbation.

During your visit with the doctor its important to ask questions and be an active part of your healthcare.  Listen to what the doctor tells you and make notations of important points you want to remember.  Make sure you communicate with your doctor if you do not think you can follow through with any of the recommended treatments.

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The MS Hug

“MS Hug” is a term used to define a symptom that is generally experienced as a tightening, in spasm, or burning sensation that affects the region of the body anywhere from under the arms to the waist.

Discomfort associated with the MS hug vary from person to person.  It is possible to have a localized bout or to feel it around the entire torso;  and to experience this symptom in waves that last from minutes to hours or longer periods of time.  The pain is described by suffers as being; crushing, dull, sharp, burning, or constricting.  The constriction can sometimes cause a perceived difficulty in drawing deep breaths which can lead to a panic attack.

MS hug is reported to be non-life threatening; though, it is important to bring these symptoms to the attention of your doctor as these are also possible symptoms of sometimes life threatening conditions unrelated to MS.  Your neurologist may run tests; such as an MRI, to see if you are experiencing an exacerbation of MS.  Tests; to rule out other conditions, such as; heart problems, gastrointestinal issues, lung problems, or chest infections may also be performed.

Treatments for MS hug sometimes include one of the following; anticonvulsant medication, antidepressants (this modifies how the central nervous system reacts to pain), and over-the-counter acetaminophen.  Some patients also find comfort using warmth; such as a hot water bottle.  The most important and effective thing you can do is to remain calm; stress will almost certainly aggravate it.  Self calming techniques such as listening to calming music, visualization and meditation can provide some comfort.  To further provide comfort; wear loose fitting clothing, apply pressure to the affected area, increase your fluid intake, try deep breathing exercises, and apply massage.  Analgesic creams sometimes bring relief to some patients.

Posted in alternative therapy, chronic disease, chronic pain, Disease, Health, ms, MS and Working, multiple sclerosis, Pain, physical pain, RRMS, Therapy | Tagged , , , | 6 Comments

The Psychological Side of MS

Awareness of psychological and emotional issues is important for patients suffering with Multiple Sclerosis.  Sometimes the issues are directly related to the disease (an actual symptom) and other times they are secondary to the diagnosis, medication, or the symptoms experienced (a reaction or result of the experience).  Crying, uncontrollable laughter, euphoria, anxiety, irritability, social isolation, depression, and sexual difficulties, are not uncommon complaints for MS sufferers.  This is a side of Multiple Sclerosis most patients prefer not to talk about; though many worry about it regularly.

Recognizing the difference between feeling normal sadness, nervousness or anxiety can be a challenge.  The indicators that signal its time to talk with a health care professional are; changes in appetite, changes in sleep patterns, depressed mood, or suicidal thoughts.

Medications (anti-anxiety or anti-depressants)  and counseling (talk therapy) are effective treatment options for improving the quality of life for people affected by psychological or emotional difficulties associated with MS.  Self care is another viable option.  Self care includes things like spending time with family or friends, exercising or diet improvements; actions that helps to elevate your mood and alleviate negative feelings.  It is important to remember though; that suicidal thoughts need immediate attention by a qualified health care provider.

Finding a local support group may help.  Speaking with others who share the same struggles helps to minimize feelings of isolation or fear.  It is also a great way to learn of new or existing treatments and to make some great new friends who understand better than anybody what you are going through.

You are not alone in this; reach out.

Posted in alternative therapy, chronic disease, chronic pain, Disease, Health, ms, MS and Working, multiple sclerosis, Negativity, psychological health, RRMS, Therapy | Tagged , , , , , , , | 11 Comments

Novartis Confirms Patient Died After Starting Gilenya – Businessweek

Novartis Confirms Patient Died After Starting Gilenya – Businessweek.

My greatest sympathies go out to the family of the individual who lost their life.  It is still unknown what the exact cause of death was.  When something tragic happens we need to find something important to learn from it so that the loss gives birth to renewed purpose.

We’ve learned to trust our health care providers and the drug companies; but sometimes even when we do our homework; and make informed choices, things go wrong.

There are risks associated with every therapy.  A patients underlying conditions may play a part in these risks.  How do we make informed decisions about our healthcare?

Speaking with your doctor and getting his or her opinion is; of course, the first and primary source of information you will receive.  Your doctor knows your health history and makes an informed decision based on this information.  Many people stop here.

Part of taking control of your health care is knowing what treatment options are available to you (see the page titled “medications and treatments” for some of the well known).  When a diagnosis is presented for a disease such as Multiple Sclerosis where treatment will be on-going and expensive, it is advisable for patients to do their homework.

Once you’ve received your doctors opinion, visit the websites of the drug companies.  Find out what side effects are possible with the drugs, find out what long term use can do, find out what financial assistance the company offers in continuing treatment if you should stop working.  Find out what training is available if the medication is an injection.  Find out if the drug will disrupt your daily routine.  These are all important considerations when choosing your therapy.  Your doctor may know what medication would work best for your health but may not realize your working and raising 3 kids; some of those therapies cause flu like symptoms, can you afford to be down?

Should you find a therapy that would suit your lifestyle better and would be comparable to the drug recommended by your doctor; talk to your doctor.  Most doctors are willing to consider other alternatives based on reasonable considerations.

Some health care plans will not cover certain therapies so it is important to speak to your insurance representative as well as the doctor.  Keep in mind, your doctors recommendation weighs heavily here to so talk to your doctor first.  There are appeals boards  with insurance companies if they deny your request.  If all else fails, you can contact the drug company and explain your situation.  They often have programs in place to help the uninsured or underinsured.

Fight for your health.  Be your own advocate.  Pay attention, do your research, create your own health file.  Work with your doctor to create a plan that works best for you.

Posted in alternative therapy, chronic disease, chronic pain, Disease, Health, multiple sclerosis, Planning, RRMS, Therapy | Tagged , , , , , , , | 1 Comment